{"id":49184,"date":"2022-10-05T14:01:49","date_gmt":"2022-10-05T12:01:49","guid":{"rendered":"https:\/\/pharma-trend.com\/en\/second-annual-rare-health-equity-summit-addresses-gaps-in-access-shares-approaches-to-build-inclusiveness-in-underserved-communities\/"},"modified":"2022-10-05T14:01:49","modified_gmt":"2022-10-05T12:01:49","slug":"second-annual-rare-health-equity-summit-addresses-gaps-in-access-shares-approaches-to-build-inclusiveness-in-underserved-communities","status":"publish","type":"post","link":"https:\/\/pharma-trend.com\/en\/second-annual-rare-health-equity-summit-addresses-gaps-in-access-shares-approaches-to-build-inclusiveness-in-underserved-communities\/","title":{"rendered":"Second Annual RARE Health Equity Summit Addresses Gaps in Access, Shares Approaches to Build Inclusiveness in Underserved Communities"},"content":{"rendered":"
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\nEvent will Highlight and Explore Collaborative Efforts to Overcome Inequities Faced by Minoritized Communities<\/i>\n<\/p>\n

ALISO VIEJO, Calif.–(BUSINESS WIRE)–Global Genes<\/a>, a leading rare disease advocacy organization, will hold its second annual RARE Health Equity Summit<\/a> in partnership with the Rare Disease Diversity Coalition<\/a> (RDDC). The event includes speakers from the FDA, community and patient organizations, academia and industry and will discuss approaches to address racial, ethnic, gender, socioeconomic and other disparities affecting rare disease communities. The event is being held November 9-11, 2022, in Atlanta, GA, and online.\n<\/p>\n

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\nOn Thursday, November 10th, Global Genes and RDDC will also host a reception at the National Center for Civil and Human Rights to network with their peers while immersed in the history of the U.S. civil rights movement, stories from the struggle for human rights around the world today, and artifacts of Dr. Martin Luther King, Jr.\n<\/p>\n

\nThe overarching theme of this year\u2019s Summit is \u201cPartners in Action.\u201d All stakeholders in the rare disease space \u2013 advocates, caregivers, patients, industry, researchers, or healthcare professionals \u2013 are working towards the common goal of improving the lives of people living with a rare condition. Sessions will focus on how we can work in partnership to reduce racial disparities in care, build more inclusive research programs, address bias and barriers to genetic testing, and understand cultural humility to create an inclusive and equitable environment for all members of the rare disease community.\n<\/p>\n

\n\u201cIt\u2019s unfair and, frankly, inhumane that people are made to suffer because of their ethnic or racial background, sexual preference, or the number in their bank account,\u201d said Deanna Darlington, Interim Executive Director of RDDC and President of Links2Equity. \u201cThe truth of the matter is that events like these are needed. We are all too familiar with the gaps that permeate underserved and historically marginalized communities. Coming together to find and create solutions to the problems that go unanswered is necessary. Working in silos or simply ignoring the challenges is no longer an option.\u201d\n<\/p>\n

\n\u201cThe takeaways from last year\u2019s inaugural Health Equity Summit highlighted the work that we must do as a community to break down barriers. As we gather again, it\u2019s up to us to use the past year as a jumping off point to continue the vital collaboration needed to ensure that people have equitable access to the resources they need,\u201d added Craig Martin, CEO of Global Genes.\n<\/p>\n

\nThe Summit will include a series of panels and breakout sessions including:\n<\/p>\n