{"id":54335,"date":"2023-02-28T18:06:55","date_gmt":"2023-02-28T17:06:55","guid":{"rendered":"https:\/\/pharma-trend.com\/en\/plunge-for-elodie-fundraising-event-returns-for-6th-year-set-to-surpass-2-million-raised-for-epidermolysis-bullosa\/"},"modified":"2023-02-28T18:06:55","modified_gmt":"2023-02-28T17:06:55","slug":"plunge-for-elodie-fundraising-event-returns-for-6th-year-set-to-surpass-2-million-raised-for-epidermolysis-bullosa","status":"publish","type":"post","link":"https:\/\/pharma-trend.com\/en\/plunge-for-elodie-fundraising-event-returns-for-6th-year-set-to-surpass-2-million-raised-for-epidermolysis-bullosa\/","title":{"rendered":"Plunge for Elodie Fundraising Event Returns for 6th Year, Set to Surpass $2 Million Raised for Epidermolysis Bullosa"},"content":{"rendered":"
\n

\nThe hometown fundraiser that has evolved into a global movement takes place <\/b>March 25 to April 2, 2023<\/b>\n<\/p>\n

WELLESLEY, Mass.–(BUSINESS WIRE)–EB Research Partnership<\/a> (EBRP) announces the 6th annual Plunge For Elodie<\/a> scheduled for March 25 – April, 2, 2023. The Plunge for Elodie has evolved from a small hometown fundraiser into a global movement, inviting participants to plunge into freezing waters to raise awareness and funds for the life-threatening rare genetic disorder Epidermolysis Bullosa (EB). 2023 marks a groundbreaking year as the Plunge for Elodie is set to surpass $2M raised for EBRP.\n<\/p>\n

\nThe original Plunge for Elodie site of Wellesley, MA is now accompanied by satellite plunges across the globe: the Greensboro Aquatic Center in Greensboro, NC; Queens, NY; Greenwich, CT; San Francisco, CA; Ireland; Toronto, ON and Vancouver, BC, Canada (hosted by Talk Shop Media<\/i>); plus a robust Virtual Plunge campaign<\/a> on social media. The cause has drawn thousands of participants and has even captured the eyes of Hollywood, with actress Jessica Biel taking a<\/a> Virtual <\/a>Plunge<\/a> in 2018. Elodie also recently captured Hollywood\u2019s heart as she shared the plunge story in her own words<\/a>, alongside Kermit the Frog.\n<\/p>\n

\nThe Plunge for Elodie was created by 10 childhood friends of Elodie\u2019s mom, EBRP Board Member Emily Kubik. Elodie was born in 2016 with a severe form of EB. She is one of 500,000 people around the world suffering from EB, and faces a life expectancy of just 30 years. Children with EB are called \u201cButterfly Children” because their skin is as fragile as the wings of a butterfly. They face severe pain, open external and internal wounds, and a grueling daily bandaging process.\n<\/p>\n

\n\u201cNone of us had ever heard of EB when Elodie was born, but as we learned more about the disease – and witnessed the challenges that EB families face – we felt compelled to act. We formed this event with the goal of making a splash for the cause. And we won\u2019t stop making a splash until a cure is reached,\u201d vows Kristan Khtikian, Plunge for Elodie Co-Chair.\n<\/p>\n

\nThe Plunge for Elodie will present the 2nd Annual Sophia\u2019s Hope Award to philanthropists Steve and Joan Belkin (Trans National Group, Belkin Family Lookout Farm<\/i>), whose dedication to this event has been unwavering. This award celebrates the memory of Sophia Grace Ramsey, a one-year-old who tragically lost her battle with EB in May 2020. Sophia\u2019s family founded Sophia\u2019s Hope<\/a> to fundraise for EBRP. \u201cWe honor our beautiful daughter\u2019s legacy as we raise money for the cause, with the great hope that others can have a life free from the unimaginable pain that our daughter faced,\u201d states Sophia\u2019s mom, Katie Ramsey.\n<\/p>\n

\nThere are currently no treatments or a cure for EB, but the Plunge for Elodie is helping to change that statistic. The movement shows first-hand the power of steadfast determination: \u201cThis hugely impactful event is making big waves for change,\u201d states EBRP CEO Michael Hund. \u201cWe are more hopeful than ever that a much-needed cure is within reach.\u201d\n<\/p>\n

\n**Corporate Sponsors for the 2023 Plunge for Elodie include: Amryt Pharma; Dellbrook JKS; Belkin Family Lookout Farm; Sophia\u2019s Hope; TransNational Group; Abeona Therapeutics; and UniBank. For a full list of Plunge for Elodie sponsors, visit the Plunge for Elodie website<\/a>.\n<\/p>\n

\nMore information on how to donate and get involved can be found at www.plungeforelodie.org<\/a>. Also follow @plungeforelodie on Instagram<\/a> and Facebook<\/a>.\n<\/p>\n

\nAbout EB Research Partnership
\n
<\/b>Founded in 2010 by a dedicated group of parents and Jill and Ed Vedder (Pearl Jam), EB Research Partnership (EBRP) is the largest global nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening skin disorders that affect children from birth.\n<\/p>\n

\nWorking around the clock with offices in the US and Australia, EBRP utilizes an innovative venture philanthropy business model. When making a grant to a research project, they retain the added upside of generating a recurring revenue stream if the therapy or product is commercially successful, then use the return on investment to fund additional EB research until a cure is found.\n<\/p>\n

\nTo learn more, visit www.ebresearch.org<\/a>\n<\/p>\n

Contacts<\/b> <\/p>\n

\nEB Research Partnership
\n
Allison McGettigan
\n
allison@ebresearch.org<\/a>\n<\/p>\n

\nPlunge for Elodie
\n
Kristan Khtikian
\n
kristanrfletcher@gmail.com<\/a>\n<\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

The hometown fundraiser that has evolved into a global movement takes place March 25 to April 2, 2023 WELLESLEY, Mass.–(BUSINESS WIRE)–EB Research Partnership (EBRP) announces the 6th annual Plunge For Elodie scheduled for March 25 – April, 2, 2023. The Plunge for Elodie has evolved from a small hometown fundraiser into a global movement, inviting … [Read more…]<\/a><\/span><\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[13],"tags":[],"class_list":{"0":"entry","1":"post","2":"publish","3":"author-business","4":"post-54335","6":"format-standard","7":"category-industry"},"yoast_head":"\nPlunge for Elodie Fundraising Event Returns for 6th Year, Set to Surpass $2 Million Raised for Epidermolysis Bullosa - Pharma Trend<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/pharma-trend.com\/en\/plunge-for-elodie-fundraising-event-returns-for-6th-year-set-to-surpass-2-million-raised-for-epidermolysis-bullosa\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Plunge for Elodie Fundraising Event Returns for 6th Year, Set to Surpass $2 Million Raised for Epidermolysis Bullosa - Pharma Trend\" \/>\n<meta property=\"og:description\" content=\"The hometown fundraiser that has evolved into a global movement takes place March 25 to April 2, 2023 WELLESLEY, Mass.–(BUSINESS WIRE)–EB Research Partnership (EBRP) announces the 6th annual Plunge For Elodie scheduled for March 25 – April, 2, 2023. 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