New Resource for the Galactosemia Community Launches to Empower Families as They Navigate Lifelong Genetic Disease
– The handbook presents information for each life stage of Type 1 galactosemia, with the aim of guiding patients and caregivers from newborn diagnosis through adulthood to help understand the disease lexicon, build a care team and educate their support network on the disease – Created by the Galactosemia Foundation and made possible through support … [Read more…]
